May 16, 2010
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Cancer Doesn't Care: An essay
Paraphrased conversation from a scene in a televised drama program on ABC:
Guy and gal are seated in a hospital chemotherapy room. The guy is hooked up to an IV. Guy: "You don't have to stay with me." Gal: "I care for you. That's why I stay." Guy: "Thank you. I just don't want you to see me like this." (He looks pretty hunky to me.) Gal: "Isn't this your last treatment? Want to go celebrate?" Guy: "Sure. Let's go out for dinner afterwards." They have a great time at dinner.One thing that really irks me about the portrayal of cancer on televsion, and especially on ABC's shows, is the wanton disregard for the facts of the disease, or it's many treatments. I listened to the above exchange about a month ago on the show "FlashForward." The show deals with science fiction in it's main plot, and when I heard the characters talking about going out to dinner following a chemo treatment, I figure there isn't really any allusion to real life in the sections which don't deal with scifi either. There have been cancer story arcs on quite a few ABC shows that I watch. Desperate Housewives, Grey's Anatomy and Brothers and Sisters have all had storylines where main characters develop the disease, and then are miraculously cured when their cancer goes into remission, usually during a sweeps season or on the season finale.
My friend Joel passed away in the summer of 2008 following a nearly 5 year bout with cancer. It started as a ball in his large intestine, grew untreated for ten years, and was surgically removed, along with most of his intestine. After the surgery, he underwent five separate chemotherapies. The cancer eventually metasasized, spread to his liver, and killed him. I owed him a dinner from an old bet years ago,. and it took forever for us to find a time when he wasn't too sick to eat. Right after a chemotherapy, one doesn't feel like eating. In point of fact, the poison which is acting as a "treatment" is formulated to allow the patient to at least get home before he begins heaving. When chemotherapy treatments are in their early stages, the patient might feel better than after he undergoes a few of them, but the guy in the TV show has had cancer for a while, and is supposedly ending a treatment cycle, so I really don't think he and his lady friend would immediately want to go out. He'd most likely want to go to bed.
ABC isn't stingy about killing off the main characters in their TV shows, either. Last week, a guy on Private Practice bit the bullet. Only 5 of the original cast of 14 on Lost are still around. Tonight, I believe characters on both Desperate Housewives and Brothers and Sisters are going to meet their maker. It won't even be the first time for Housewives, which has killed off two of the cast members in seasons past.
I happen to watch quite a few ABC shows, but I suspect they aren't the only media outlet which seems to shy away from accurately portraying cancer and it's treatments. Although many characters die from murder and sudden brain hemmorages, cancer is a long drawn out disease, which eats at the victim from the inside out, and usually after a couple of episodes showing the character bald from chemo treatments, the cancer miraculously goes into remission, and in subsequent episodes, it's rarely even mentioned again. If only real life were so simple.
What bothers me is the message this gives to those who don't know that much about the disease. Thankfully, I've never been diagnosed with cancer, and the one time I've had biopsy done of a polyp found in me, the prognosis was negative, and no cancer was found. I'll never forget when I drove Joel back from his colonoscopy, and in his inebriated state from the anaesthesia, he told me about how the doctor started explaining chemotherapy to him. My poor roommate didn't even realize what was happening until the anaesthesia wore off a couple of hours later. This began a brutal five year war with the disease, much longer than a 13 episode television story arc, and he didn't even lose his hair till after three chemotherapies.
Not only was he not hungry after one of them, but in the end stages, he hardly ate at all, and even though he was six feet tall, he wasted away to about 130 pounds.
Cancer is a disease in which unhealthy cells multiply throughout the body, invade healthy cells, and spread the disease. Anyone can get it. Over a million people a year are diagnosed with some kind of cancer. It can start anywhere, and is usually named for the place in which it starts. For instance if cancer begins in the breast, it is called breast cancer even if it eventually spreads to the liver. Cancer doesn't care what ethnic group or sex it invades. When the disease spreads to a part of the body that cannot be treated, the patient usually dies. And this death is not quick and easy, but incredibly painful and protracted.
A cancer patient can live for many years, or just a few, after diagnosis, but no doctor will ever proclaim, like the ones in the TV shows do, that the cancer is completely gone. It goes into remission, and it can come back, and usually does. I used to really feel for Joel when he would go in for his post chemo appointments, and his oncologist would tell him that there were incredibly reduced rates of the disease in his system. This caused him a sense that he might be beating the disease, but the doctor never told him he was completely cured. There was always a chance that it would return, and it did, almost like clockwork.
Joel had different chemotherapies, including two experimental treatments, because he actually lived longer than his oncologist figured he would. For the first couple of years, one would hardly know he had the disease at all. He looked and acted the same as always, and he wasn't in that much pain. He did suffer from the chemo treatments, usually in the form of nausea in the hours immediately following them, but both of us were amazed that the disease, which began as a large single tumor, and eventually spread via his lymph system to his liver, didn't seem to act as a "disease" at all.
Three years in, Joel began to appear more tired, and lost weight. His hair did fall out, and grew back. One of the chemo treatments caused him to lose feeling in the soles of his feet and the palms of his hands. Sometimes it seemed as if the treatments were even worse than the disease.
Once the cancer really started to spread, the chemo didn't work at all, and his last chemotherapy series was cancelled only a couple of weeks before he died. At that point, anyone who met him knew the end was near.
I did see one movie during Joel's slide which sort of prepared me for what he might finally have to go through. It's from 2006 titled "Two Weeks" and stars Sally Field as a woman going through the last two weeks of her life in hospice in her own home. Eventually, the pain became so great that she was hooked up to morphine all the time. At some point, either the cancer or the vast amounts of morphine cause the body to fail. Joel and I talked about this scenario. As it happened in his case, the last stages of the disease struck pretty quickly, and we were preparing for the hospice when he passed away in the hospice preparation center of the hospital. During the last weeks of his life, we didn't talk about his death either. Joel was pretty brave, and tried as much as he could to just be himself. Both his brother and I knew that he was in incredible pain, however.
Cancer attacks a lot of folks after age 55, so it is very important to get consultation from your doctor, and to go through as many early screening tests as possible. Don't wait. One third of cancer deaths every year are related to nutrition, overweight or obesity, and physical inactivity. Some cancers are caused by drinking alcohol or smoking cigarettes. Some cancers are passed on in the DNA from generation to generation.
Cancer is not specific. Cancer doesn't care. Cancer can strike at any time, and any one of us can be at risk. I've been lucky so far, but I have lived alongside the disease, and I read all the material Joel's oncologist supplied him. I constantly ask my doctor, during my yearly physical, about screening tests, and about signs that my body might be telling me.
It's a shame that media, and somewhat popular television shows paint such a lenient picture of the dangers of the disease, and the terrible times victims suffer during the treatments. So far, there is no cure. And once the dominoes start to fall, they usually continue till the patient is gone. Fictional television series use cancer as just another story arc. I'm a writer. I understand conflict and conclusions. But the conclusions writers seem to come up with when presenting cancer in the media still bothers me. Becuase I know firsthand what the disease can and usually does do. Some people are lucky. A fellow workmate had breast cancer in her 20s, and is in her late 40s now, and the cancer has been in remission all this time. But sadly, this is the exception, and not the rule. The TV shows seem to give people a much more rosy picture in the name of drama.
The American Cancer Society has a very detailed yet easy to maneuver website that answers almost any question you might have about cancer.
EDIT: 5/17/10 6:51a.m. pdt. A new subscriber and commenter, Stephanie (they_call_me_steffyjean), has a "Relay for Life" page on the ACS site. HERE is her Xanga blog entry detailing the run and her reasons for doing so. You go girl.
Comments (81)
the American Cancer Society is a business entity, unfortunately :[
My uncle died two weeks ago for Cancer. And I visited a friend, who has been brought home suffering of Cancer. When I visited the friend, she was hooked on to morphine, and I can imagine the pain she may have been. Yet, when she saw me she spoke, and was glad that I came. Then after I went some others too, came and we prayed for her as she is a Catholic. She has younf children, and I prayed to the Lord, that she cannot go now. Her husband was crying looking away... I am sure the pain the whole family is going through .. not only for the Cancer that eats away, but the pain the family has to accept is unmeassurable.
Yeah! Desperate Housewife, and Brother and Sisters, just minimise the whole thing. Its rediculous, how they make stories, of the patient recovering, and having children and what not! It is stupidity to me on the part of the producers.
I don't watch much TV, but that first scenario just made me angry. I did not realize that's how things are being portrayed on shows, but I'm not that surprised--sadly. You are so very right about the truths about cancer. Every case really is different and yet in a way they're all fairly similar. My mom was diagnosed with breast cancer in 2007. I'm so thankful she did not have to do chemo. She had surgery and radiation but no chemo. She is in remission, but we all know that can end at any time. Thanks for posting this, you make very good points and speak from experience. I appreciate your speaking out.
I will never forget the story of Joel.
Thankfully, no one in my family has ever been diagnosed with cancer, but I have several friends who have had to endure this hellish disease.
I often wonder if I would be strong enough to go through the regime of cancer treatments. Sometimes I have told my husband that if I am ever diagnosed with late stage cancer, just give me a handful of strong pills and let me go (relatively) peacefully.
Makes me think of how many people cannot afford to go to the doctor for any reason, let alone for a routine check-up. Hopefully that will change.
Great post. It seems in the media and on TV shows cancer is often glamorized to a certain point and not portrayed accurately at all.
and I'm very sorry about your friend
I was almost positive that life can be resolved in 30-60 minute chunklets. You have effectively disillusioned me. Kudos.
RYC: It's good to have a fellow poet in the midst.
I think anyone who has actual experience at some level with the disease has to be aware of the fantasy on TV. (Except maybe the writer for TV!!!) I've seen so many people die from this disease, including both of my parents. I guess the only good thing about treatments is that they can prolong life, although of course, there may be a cost.
I never want cancer
...
Joel sounds like he was a very stoic individual.
I took care of my uncle in his final months with lung cancer.
No t.v. show comes close to how that is.
*hugs*
The American Cancer Society has tons of great information! Thank you for sharing the link for everyone! And you did a great job on the essay.
I'm actually participating in the ACS's Relay for Life and have been posting about cancer a lot.
AND I'd love to share your post here with my readers .
It's HORIFFIC. I think many on xanga are just so young they've not been exposed to witnessing. I witnessed my friend through her brain cancer, it's undescribible, practically. But you've done a great job.
My Granpa [paternal side] and my Grunpa [maternal side] each went out with cancer, as well as my father. That'll give you a few ideas how I'm likely to fade out, won't it?
I barely remember how it was with Granpa, other than that there was a hospital bed in "an actual bedroom" [I think it was at his home. I know I felt creepy being too near him - afraid that I would somehow make him sicker - so I gravitated to the candy dish that had the dozen or so Starlight mints]. I remember overhearing that he had struggled with it "...right about five years ago, but it's 'getting time'..." - and seeing, instead of the robust fella with the ruddy forehead and beaked nose and pot belly - seeing a bloated, tiny belly attached to spindly arms and imploded cheeks, pale skin, and "some kinda crazy film on his eyes" - I have no clue as to what age I was as these events took place, but, as you can imagine, I was quite young.
Grunpa's passing, however, struck me harder - I was fifteen when he developed a racing 180 beats per minute pulse and shallow breathing rate...which caused us to rush to the doctor's. Short end of a too-long story, they gave him six days, and he stole six months until he tied off the last loose end: me. I finally came to see him, with him half out of it and on morphine drip, and, although he was known to his contemporaries as, "Slim", his remaining 78 lbs was stretched out thin over his 6'0" frame.
My father's passing began with the discovery of one "little problem" that "needed looking into", progressed in 24 hours to cancer of the liver with prognosis of "perhaps a couple years", to metastasizing in various parts o the body and an update in the next 48 hours that he would have, "...maybe two weeks..."...which, upon the review in the morning, revealed, "perhaps days...perhaps less". I did not make it to the hospital, but we spoke on the phone, and he "met" my youngest on a VCR tape that was overnight delivered. After viewing, he called me back, and I told him that yes, he could "go". Less than two hours later, I received the call that he had passed away.
These things happen. Quod te non occidit, te certe fortiorem reddere poterit.[That which does not kill will only serve to make you stronger.]
Neither television nor the movies can convey the full effects of cancer on both the patient and the surrounding family. I honestly don't believe that such a thing could be conveyed in any given media format, and I'm not altogether certain that people would know how to handle the entertainment if it did, especially given the state of medical care today.
unfortunately, cancer has many faces...actually, quite a few people die quickly from it...quick or slow, it's no way to go....
I seen it ravage a family friend. There's nothing charming about it.
I took Massage Therapy in college, and part of what I had to learn (it's part of healthcare here so it's rather intense) is how to treat people who are receiving radiation therapy or chemotherapy. I even had a placement at the oncology ward of a toronto hospital. What I saw there was completely brutal. One man was entirely all too happy to be dying from bone cancer, one of the most painful cancers...
I saw people wasting away, swelling in odd areas, happy to see me one week, next week in the ICU, and then I never saw them again, hearing their stories. It's all too scary as to what people go through. I wish that if you must use cancer as a "story arc" in a television drama, make it real. Don't sugar coat it.
Your post was excellent. And I'm very sorry for your loss.
@elelkewljay - Dear Thu, The ACS is a charitable organization, and files IRS form 990. They have a financial disclosure page on the website. I don't know that they make a profit on the donations, and I have only heard good things about the society. Most of the donations go into research, and the Society was founded in 1913. Please elucidate me as to any profit incentive they might have of which I have no knowledge.
@Mal_P - @webofsimplicity - Dear Angelina and Web, I've meant to write this for a while now. I do understand plot devices, being a writer, as I mention in the post. I do research on my entries prior to posting, and did find a couple of blog entries deriding the media for not giving a true picture of the disease. Another show mentioned on a blog which dispensed a false sense of hope was Fox's House.
@llibra - Dear Linda, I was talking to my neighbor about lasik surgery after my cataract surgery, and she told me that because she doesn't have employment, she doesn't have health insurance. I've always been an advocate of socialized medicine, but I don't think we'll ever have that in the U.S. because that would mean increased taxes, which most people would oppose.
@gottobereal64 - @ShimmerBodyCream - @Texana - Dear Gretchen, Shimmer, and Holly, HERE is a link to Joel's bio which I posted last year as a memorial to him. And HERE is the collection of "The Cancerboy Diaries" a series of poems I wrote during his illness. After 14 years as roommates, we hated each other's guts, but I had an opportunity to practice the tolerance I always preach when he was diagnosed, and I became his primary caregiver.
@they_call_me_steffyjean - Dear SteffyJean, Thanks for the visit and comment (and recommend), and I'll be returning the favor soon. In the meantime, share away. You might also be interested in the series of poems I wrote during my friend's illness for which I provide a link in the reply above this one.
@the_kcar - @tialoca_talks - Dear Max and Tia, Death is never pretty. I don't know whether going quickly is better than going slowly. Going from any disease before one's time is terrible. I'm ready to face my maker when the time comes, but I'm in no hurry. I do wish my friend Joel had done more during his last years than remain on the couch flipping channels on the TV and drinking beer. He never developed a bucket list nor seemed to care to want to do anything speical before the disease really got bad. But I learned long ago not to judge people, and I let him be. At least he had the chance to do something if he had wanted to. When one goes quickly, they don't have that chance.
I have nothing to add, but great post.
Thanks for sharing this, Mike. Thanks also for talking about statistics - 1/3 of cancers nutrition-related, some smoking-related. Cancer is not entirely preventable, but there are certain things we can do to live healthier lifestyles and hopefully lower our risks. If we do get cancer, it really does affect all parts of our lives. It's not like a malfunctioning organ. It is 'bad' cells multiplying in dangerous ways.
Good post, Mike. My best friend died last year from bone cancer in his jaw. It was not pretty. His last two years were miserable. Disfiguring surgeries and feeding tubes, chemo and radiation. Finally lapsed into a merciful coma a month before he passed.
Thank you for this post. I'm a cancer survivor and even almost 2 years post translpant, I can't go to a check up completely calm.
Cancer has many faces, and I have seen people sail through treatments with little side effects, but that is not the norm for sure.
my 42yr old niece has breast cancer and just had her 2nd chemo treatment friday and she is fighting the demon cancer straight on. Maybe they mean let's celebrate life and fighting for it but I agree -Celebrating is not a good word.
@Babyboomerjill - Dear Jill, They were "celebrating" the end of that round of chemotherapy, but what really got to me was that they went out to eat. Joel got sick after his chemo treatments, and didn't want to be anywhere near food! The chemo causes nausea in the patient, so they wouldn't want to be full of food anyway! The plot point was to get the two characters together, but the writer obviously didn't know a damn thing about cancer or it's treatments.
I recognized that scene you mentioned right away. I also rolled my eyes at it when I saw it. I am a cancer survivor, whatever that means because as my oncologist said, "Once a cancer patient, always a cancer patient".
I did not need chemo because I had stage 1. I was put on heavy-duty therapy taking pills everyday. They made me constantly feel unbearably cold. Nothing could warm me up. I did not lose hair on my head but did on my arms and legs. No shaving! Woot? No. I lost a lot of weight. The pills took my appetite away and smells of certain food made me gag. I threw up constantly. And this was not chemo! The pills were not working so I had surgery. I still have to go get checked once a year. It's been 13 years since but I dread the annual checkup because I am at a higher risk of developing another cancer. How television can get being a cancer patient so wrong is incredible to me.
Accept my condolences for the loss of your friend.
Mike, I've lived with cancer for almost my whole long life - fortunately the most treatable kind - skin cancer. Two of my epsodes of those were very scary - malignant melanoma and an atypical leiomyosarcoma (sp?) which required fairly major surgery. Add to that dozens of Basel and squamous cell carcinomas - most removed by Mose surgery - an involved process where the surgeon slices and the pathologist inspects until there is a clear margin all around. It also includes a lot of cauterization - yuk - the smell of you burning. My head and arms are pretty much a mass of scars.
Fortunately this type of surgery does not often require a chemeotherpy followup - but also unfortunately the cancer frequently reoccurs.
The only way to live with this is - and any other cancer - to try to live as normal a life as possible. Most cancer is beatable if treated early but most of us too often ignore warning signs.
@baldmike2004 - that's true and that is the way my niece have been after 2 treatments-nauseated Sorry about your roomate again I know it's been a few years now for you.
:wave: More people that I either know or at least with whom I am acquainted are experiencing this horrible scrourge.
You have pegged it with three words: "Cancer doesn't care".
Thank you for posting.
~~Blessings 'n Cheers :goodjob:
@baldmike2004 -
I know that when I saw Grunpa pass, I decided that I had to live as if there were no Tomorrow - and made that a Way of Life. I'm not yet 40, but I know that if Death were to suddenly hit, I would know that I had lived a full life, and I had made sure that those who concern me know my feelings for them.
Cancer doesn't care, and Alzheimer's never remembers...and my family's got both of them in the heredity. Besides: no one gets out of this big game alive - it's always better to live it to its fullest.
Everything in excess...to enjoy the full flavor of life, take big bites. Moderation is for monks. - Heinlein
I've seen the way Ma was wasting away each day. Her breast cancer finally sunk all the way to her bones and then her whole body. It's a bloody disease that brings misery with it. I hope that someone finds a cure that would rid the world from it.
I know you miss Joel, thus you gave up the cats and left your home willingly, but, sweety, I'm happy that he's free from this messed up world and finally relieved from pain.
*hugs* Hang in there
Cancer is ugly and has no boundaries. You walked through it with your Joel faithfully,the best gift you could have ever given him.
I am grateful you wrote this, Mike. I have lost two husbands and a fiance to this disease and each was different in cause and treatment. I fear cancer so much that I have left instructions that if I suffer from an inoperable or incurable cancer that I do not want chemo or any other treatment. I want to be pain-free as much as possible.
I came here after reading the awesome comment you made on Dan's who is your favorite xangan post. I was told my cancer was no longer in remission earlier this year and have just underwent a rather serious surgery that allows for me to have alot of free time on the internet. My other site My3day is all about my training for a 3 day breast cancer walk although I admit I have not posted much to it recently.
I am young, and I was even younger the first time I was diagnosed. I have struggled with my illness over the years, and even more so the cavalier attitude of friends that are not so close, co-workers and bosses who see these protrayels on t.v. and in movies and simply don't understand why I am too weak to make it into the bathroom let alone into work. Thank you for this awesome post, but please remind your readers that Cancer doesn't care about age either. Regularly seeing your Dr and reporting any changes in your body is the most important thing you can do for your self.
I will never forget the story of Joel.
You are right in that cancer doesn't care. TV does tend to make things out to be much more rosy than reality actually is. It's not completely gloom and doom though if the cancer is caught early enough. This past year I've be able to witness a battle with cancer second hand- a friend's mother who lives close by. The story currently has the tv ending as it seems it was caught soon enough and is in remission with only a few chemo treatments. Even "best" cases though the pain and uncertainty are not captured by tv.
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Dear Mike,
Thank you for sharing this with me and your fellow xangans. I'm so sorry for your loss. You were a great friend standing by him and supporting him through this. I've had many relatives die of cancer and I've seen first hand the devastation it reeks upon a family. The ACS has come a long way in even the last year, but as you said and we all know, the cancer will come back and ultimately kill you. This is the second time my Mom has it diagnosed. My sister had thyroid cancer 3 years ago at the tender age of 32. I will be getting screened within this year, just to be safe. Cancer will touch every person on this earth in some form or another. I just hope that they find the tools to make a cure soon.
Your friend, Caitlin
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